GBS | CIDP
Foundation International Ensuring That Everyone has Access to the Right Diagnosis and the Right Treatment Right Away
SUPPORT, EDUCATION, RESEARCH, ADVOCACY
What If: You had a cold or flu and four weeks later, you were in intensive care fighting for your life?
What If: You woke up one morning and couldn’t stand or walk and suddenly you couldn’t move your arms?
What If: You were trapped inside you own body, completely paralyzed and were only able to communicate by blinking your eyes.
What If: You landed in ICU and could hear people talking around you but they never knew you could hear them talking about this: Guillian Barre syndrome could keep you in this state from days to weeks to months.
Guillain Barre syndrome (GBS) can affect anyone at any age. It strikes one in one hundred people occurring when the body’s immune system attacks itself causing an inflammatory disorder of the nerves outside of the brain and spinal cord.
What If: You had all of the above symptoms but they came on gradually and you were told that you were simply stressed or tired, or worse that you most likely had MS or ALS.
What If: These symptoms kept increasing and worsening and you were repeatedly sent home from the ER, from physicians who could not diagnose you?
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) is similar to GBS yet slower to progress, is chronic and requires regular plasma infusions (IVIG) to maintain a productive life.
What If: You need support, information, connection, assistance in understanding your new-normal?
THE GBS-CIDP Foundation International is the preeminent, global non-profit organization supporting individuals and families affected by GBS, CIDP and variants.
Founded in 1980. 35,000 members worldwide. 160 chapters in 47 countries. 35 global centers of excellence. 100 US chapter support group meetings annually. 20 member Global Medical Advisory Board . Funding research. Improving access to care and global awareness.